Cancer 248
Posted on April 13, 2026 Leave a Comment
I did a short speech at the living wake, trying to explain my views about cancer and death. A couple of people have asked me to summarise it here, so in the interests of breaking my own rules of blogging, here goes, beraing in ming that, two days later, I am still very tired and might fall asleep while typing, I found it difficult to give the speech, not because of emotion, which I did fear, but because I could hardly speak given the tumour pushing up against my diaphragm. I was constantly out of breath. My natural ability to throw my voice across the room was severely affected. still, I had a go.
I started by welcoming everyone and thanking them for coming. Their presence was important to me. It does give me strength to try and continue the fight. I called it a living wake, explaining that people would if possible want to be at their own wake, if only to hear people being nice about them in a way that doesnt happen often in your life. I said I wasnt going to spend time thanking everyone who needed thanking, but I was going to make an exception for Sue, which I did, and she got a good round of applause because of what she does for me, what she puts up with, and how she manages it.
I then moved on to the philosophical side of the speech, arguing that there are three key stages of life, childhood, adulthood, and retirement. I have experienced two of these stages, and I have been very happy in both. I had a fantastic childhood, building tree houses, digging escape tunnels, having a fort on a hill, woods, a quarry, a field (I had a big garden). I also had a fantastic adulthood, developing a family, a network of friends, making some sort of contribution in my work. I pointed out that I only had one ambition, to write a book, which I achieved at the age of 29. I said that I supervised around 40 PhD students and hundreds of MSc students from around the world, and I had learned a lot from them. I pointed out there are things I have never done, such as skiing, but someone in a stetson in a gulch near Death Valley said ‘howdy’ to me and I said ‘howdy’ back. There are lots of other small but meaningful examples.
I am missing out on that third stage, retirement, where I was supposed to have enough money to live on, and to go on holidays and travel around. We had planned to roam Europe, but it is not happening. We have done a little since my diagnosis, but that is coming to an end. But as Marcus Aurelius said, “You have lived for 5 or 100 years. What is the difference?” He was clear that from atoms we come, to atoms we return, with just a short time between that is our life. Take what is given and be happy, don’t regret a future you were not fated to have.
Dealing with cancer has been the biggest challenge of my life. When I was diagnosed, I was given 2-2.5 years to live. It is now 3.3 years, so in one sesnse I have done well. I do feel a bit of a fraud, telling everyone I was dying and then living this long.
I studied philosopohy for two years as an undergraduate. I was drawn by many areas, but two in particular are relevant here. The stoicism of Marcus Aurelius, the Roman emperor, is important to me, the way we take what we are given with strength and reason. We don’t give in to irrationality and emotion. It is important to be strong. the experience of cancer has taught me that people are strong, that they are resilient. the language of war is better than the language of the psychologist to explain how we should deal with cancer. The other philosophical approach is existentialism as explored by Sartre, the idea that life itself has no meaning except that which we give it. Life is just a matter of breathing from birth to death. To make something of it we ourselves as individuals must decide what the point is. There is no external force that determines our purpose.
This has its importance for dealing with cancer. According to Nietszche: “He who has a why to live can bear almost any how.”
I have always been an atheist. Getting cancer did not challenge this at all. I do not fear death, but I do fear dying. I fear pain in particular. Death is nothing. Most of us are known in a two up two down fashion. Beyond our grandparents and grandchildren we are nothing. David Eagleman said: “There are three deaths. The first is when the body ceases to function. The second is when the body is consigned to the grave. The third is that moment, sometime in the future, when your name is spoken for the last time.”
My life and death is summed up in one of my favourite Bertrand Russell quotations. “I believe that when I die I shall rot, and nothing of my ego will survive. I am not young and I love life. But I should scorn to shiver with terror at the thought of annihilation. Happiness is nonetheless true happiness because it must come to an end, nor do thought and love lose their value because they are not everlasting.”
My final piece of advice is that life is what you make of it. We don’t need grand ambitions, the smallest things can bring the greatest contentment. Live for now, not for a future that might not exist, but don’t forget your community, your friends, your family, your commitments.
Cancer 247
Posted on April 13, 2026 Leave a Comment
The hallucinations are getting worse. A few minutes ago I thought I had a mug of tea in my hand. I raised it to drinķ from it and my hand just kept moving past my face. There was no mug.
Another example – I am not sure it is an hallucination – that has occurred 2-3 times today is where I stare at my arm and I am convinced it is not mine, even when I touch it.
The hallucinations are increasing with the tiredness. I am very tired today. I have spent most of the day asleep. It is not surprising after my living wake yesterday. My son called it Awake. A couple of others have taken it up. I am not sure. What do you you think?
I wrote about the wake on a Facebook cancer support group. Everyone who responded loved the idea, perhaps it will start a trend. There are 180 likes so far. While I like to think everyone should have such an event, I am not sure there is always the community there to create and support it. It is not an event I could have created by myself. It depended on so many other people. Still, it could have different formats.
Cancer 246
Posted on April 11, 2026 1 Comment
Well, that was an experience. I have some advice for those of you who have a terminal diagnosis of one sort or another, don’t wit until you are dead to have a wake, especially if you have a wonderful set of friends. I don’t really know where the idea ame from. It was originally going to be a few people have dinner together, then 36 people turned up for the meal, but we had not decided to do anything special, so we decided to arrange it properly.
I have good friends. I am not going to mention anyone by name, partly because I am likely to miss someone out and upset them, but you people who did so much, you know who you are. I understand many people would like to be at their own funeral, partly because it is the one place where everyone is nice about the person, telling positive stories, and generally laughing with the dead person. Dead person? No. Don’t wait. Organise your own wake or, as in my case, get your friends to organise it. Some people thought it a little odd to run the wake while I was still alive, and I think it took until the wake itself for them to realise what a positive idea it is.
My involvement in the organisation was to determine who to invite. Given I was the only one who knew everyone that makes sense, and now there is a list available for the real funeral. The wife just thought it was a strange idea and didn’t want to be involved. OK, not so much a strange idea but another way of accessing death-related emotions and so unnecessary. Other friends (and relations) picked it up and ran with it.
We had a three hour event in the local parish hall. It started with me giving a short speech, made all the more difficult by the bloody tumours pushing up against my lungs and stopping me accessing my golden voice, where I thanked everyone for coming, and took the liberty of thanking the wife for everything she has done for me. Yes Sue, that is you. And finally a little philosophy of the type that gets me through cancer and dying. That was enough from me. We then had our village singer with a rendition of Yesterday – apt really – followed by an auction. We took the liberty of telling people to bring cash if they could as we thought to try and raise money for Cancer Research. That worked quite well. At the same time there was a raffle running to raise further cash. then there was a short quiz about me, followed by the butcher arriving with pies, peas and gravy. After this, the last hour belonged to the village band, all members of breakfast club, who sand a good range of songs (OK, mostly my punky stuff) and – as an amazing bonus for me – several gave talks about aspects of me which brough tears to my eyes. That sounds a little egotistical, but it was a wake for me!
The attendees came from all sorts of backgrounds. There were people there who knew me when I had hair (I lost it in 1991), several ex-PhD students, one of whom expressed how I was lucky to have such a community and now they understood how I tried to create one for my students at university. There were colleagues from work, friends from all sorts of places, relations, one or two people I didn’t know well but who were invited anyway, and a few people who invited themselves. There were some older people, some children, and others of diverse ages. There were psychologists, oncologists, chocolate makers, music makers and surveyors, schoolchildren, workers and pensioners, There were horse riders, potters and electronic engineers, veterinary nurses, welders and a GP. A range of professions, in fact, not a bad selection for a desert island.
The only thing they had in common was knowing me. Together the auction and raffle raised around £1500 – I haven’t counted it properly yet – which I think isn’t bad as the event was not about collecting money.
At the end as they left everyone was very positive. Some had originally thought the idea of a living wake was a strange idea, but I think most now want one. I will put some pictures on Facebook.
Thank you again, everyone, you made my day. You have given me strength to continue the fight. I sometimes think you do not know what you do. Just by being there you help me continue.
Cancer 245
Posted on April 8, 2026 Leave a Comment
I have been a bit rough lately, though not so bad now. I am trying to get into the habit of having morphine 4-5 times a day, but I find it difficult. I am not designed to take painkillers, though rationally I know it is the right thing to do. I am regularly getting sick and tired the week after my treatment, which means there are relatively few good days in my fortnightly cycle.
The tiredness is intense now. I fall asleep very easily. Leave me in my chair for five minutes and I will probably be asleep. Add to this the hallucinations and things are a bit troublesome. This morning the wife came in and asked me why I had my wallet in my hand when I was asleep. After a few calculations, it turns out that in my dream I was buying someone some cigars, but in terms of hallucination I had tried to actually pay for them. I hope I wasn’t online making payments. I don’t really want a load of cigars to turn up at the house. If I am hallucinating – that isn’t the right word is it because I am actually carrying out actions – then I worry what else I might be doing. I have always been a sleepwalker, there has always been a link between sleeping, dreaming, hallucinating and some form of real action. It seems more intense now. I do worry what I might get up to. Perhaps I need locking up at night!
Food is getting to be a problem. Instead of being a highlight of life I am increasingly looking to eat simple meals, which is a shame for the wife as much of what she does revolves around food and preparing nice meals for me. Now all I might want is a boiled egg and some oatcake, or like tonight, pasta. Pasta isn’t a meal. It is a Tuesday night snack. Now it is easy to eat. I am also eating less meat, and less complicated meat. I am choosing vegetables, or choosing fish. I told you I was ill.
I did manage to get outside and do a little work today. I set up and used the pressure washer.
Driving is getting more difficult. You may have seen how I look at driving in relation to the worsening of the illness, and now I am getting tired just driving around Derbyshire. If I drive 20-30 miles I am tired. We are still planning trips away but it is increasingly doubtful whether any trips will involve going abroad.
Plans look good for Saturday. Thank you to all those who are helping sort it out. I have been left with relatively little to do, but then I suppose one should not have to be involved in the organisation of one’s own wake! Anyone who would like to come but has not let me know then please let me know. I can share my steak pie and mushy peas with you.
Cancer 244
Posted on March 31, 2026 Leave a Comment
Chemo brain (chemo-brain, chemobrain?) is a thing. It is a thing I have in increasing quantity/amount. There are two main components at the moment, at the lower level I forget words, usually nouns, at the higher level I forget whether I have said something, or had something said to me. I forget people’s names, I forget the easiest of words.
At one level I probablyt seem OK. I have just submitted the first draft of my Master’s thesis, 25,000 words once I managed to cut it down. The feedback is as I expected, so I seem to have awareness and clearly I remembered enough words. I do like to think that the more I practice with words the slower the decline will be. I am writing a lot, reading a lot, and I am talking as much as usual – I think….
I have never claimed to have a good memory, except for maps, but the decline is significant, and increasing, despite my continuing to write.
It is an odd feeling, saying a sentence and then getting stuck at a simple word. A blank comes over me. Usually I know I am not going to remember it, but occasionally I can find a clue (beyond the sentence I am saying) that can help. I am not yet at the stage where everything in the house needs to be labelled, but you never know.
The potentially more disruptive element is the meta-cognitive level of remembering what I have said, not remembering what I havent said, and so on. This is difficult in a social situation, not only might I not remember someone’s name (even if i have known them for decades), I don’t remember what they have said to me or I have said to them. If I repeat myself in some situations then it can be embarrassing – though not usually to me as I have no idea what the problem is!
We drove to Devon to see the kids last weekend. I have noted before that my driving distances are reducing. I am not thinking the drive to Devon is a little long. I don’t have the driving stamina any more. The principle that once I can’t drive then that might be the time to stop treatment might still be right. Life without driving would be like bacon without eggs or a meal without gravy – unthinkable.
When we got back I was fine but within a short time I was asleep. Apart from a few awakenings I was asleep most of the night, but I am still dead tired. Fortunately I didn’t fall asleep driving to the hospital, but I have to get home yet after the current treatment is complete. Stay clear of the roads north of Derby this afternoon. But – this is another problem. If I continue to accept treatment when I can’t drive, how do I get to the hospital? Don’t even think about public transport, that would take a day each way.
