Cancer 249
Posted on April 18, 2026 2 Comments
I am really starting to hate nights. I was never very good at them, never very good at sleeping, and during the first couple of years of cancer I sort of managed ok, usually sleeping 3-4 hours, which seemed sufficient. Now I can’t go to bed because I can’t lie down to to breathing problem. I don’t know the cause of the breathlessness. The consultant yesterday sent me for a CT scan to see if there is a clot. There isn’t. I don;t know if that is a good thing or not because I don’t know what is causing the breathlessness. My bloods are a bit screwy but apparently that is not the cause of the breathlessness. I still feel that there is pressure from the tumours pushing on my diaphragm and making breathing increasingly difficult, but I am probably wrong. The consultant wants to check out my heart, perhaps next week.
I have had my treatment cancelled twice in the last two weeks. The consultant yesterday said I looked much worse than I did the last time she saw me. I am not sure whether she would say that to all her patients, or just patients like me. I have some difficulty talking, my skin is discoloured, I don’t have the usual cheerfulness that I like to put on when I see any medical practitioner. It didn’t work this time. So I will be seeing the consultant every week for at least three weeks while they decide what to do with me. I did say I could do with a rest from treatment as it is grinding me down. The times I want to die immediately are increasing. There are many points where I could put a gun to my head and finish it. I am not sure how much more I can deal with, which is why I want the treatment break, to see if I get a little more healthy (probably not the right word, but you know what I mean). I would also like us to be able to have a holiday somewhere, Scotland or Northumberland, and not have to get back within a six day period.
I am also hating nights now because I am mostly unproductive. I am hardly reading, I am doing little research towards my degree. I am asleep more than I was but that itself is another problem. I am sleeping at night and sleeping during the day. I am not certain about this but I always thought someone with a terminal illness tends to sleep more. I am now sitting in my chair at any time of the day and falling asleep, sometimes for minutes, sometimes for hours. The same can happen at night, thugh it hasn’t for the last few nights. If I am just going to sleep whenever I sit down what is the point of it all?
There are good times. I felt really rough this morning, but we went out for lunch to a friend’s house, with a large group of people who were all at my living wake last week. We ate pies, mash, peas and gravy, along with chocolate pudding and custard; and I know everyone is caring for me and wants me alive and doing well, and it does help (hint: invite me for lunch and supply chocolate pudding and custard). I had a good time today. I have known these people for decades, some of them since childhood, and I want the chance to spend more time with them. They help, you help.
But in the end my body is falling apart and increasingly hurting. I feel I am in another stage, a stage less pleasant than I was in a few months ago, one where there are fewer good days. In the end, what is the minimum number of good days a week that I need to have before I just want to die? Six months ago I had 10-12 good days every fortnight, now I am not sure I have any good days. I have good times, I have good hours, but full days? I have not had one for a while. Now it is more of an effort to get up and get moving in the morning, and be cheerful as long as possible. All my interactions with others help me, but in the end I am alone in my thoughts and feelings, no one can fully take away the pain and increasing levels of depression.
Still, on the bright side, I am still standing. I am still managing to do things. I can still drive. I am lapsing in getting on with my MA but I had a good supervisory meeting a few days ago and I will spend time in the next few days getting on with it (I am writing about women in early modern England, the aristocracy at the time, and considering the role of narrative in historical work). Chin up, stiffen the lips, and keep the moaning to the written page where no one has to see it.
Cancer 248
Posted on April 13, 2026 1 Comment
I did a short speech at the living wake, trying to explain my views about cancer and death. A couple of people have asked me to summarise it here, so in the interests of breaking my own rules of blogging, here goes, beraing in ming that, two days later, I am still very tired and might fall asleep while typing, I found it difficult to give the speech, not because of emotion, which I did fear, but because I could hardly speak given the tumour pushing up against my diaphragm. I was constantly out of breath. My natural ability to throw my voice across the room was severely affected. still, I had a go.
I started by welcoming everyone and thanking them for coming. Their presence was important to me. It does give me strength to try and continue the fight. I called it a living wake, explaining that people would if possible want to be at their own wake, if only to hear people being nice about them in a way that doesnt happen often in your life. I said I wasnt going to spend time thanking everyone who needed thanking, but I was going to make an exception for Sue, which I did, and she got a good round of applause because of what she does for me, what she puts up with, and how she manages it.
I then moved on to the philosophical side of the speech, arguing that there are three key stages of life, childhood, adulthood, and retirement. I have experienced two of these stages, and I have been very happy in both. I had a fantastic childhood, building tree houses, digging escape tunnels, having a fort on a hill, woods, a quarry, a field (I had a big garden). I also had a fantastic adulthood, developing a family, a network of friends, making some sort of contribution in my work. I pointed out that I only had one ambition, to write a book, which I achieved at the age of 29. I said that I supervised around 40 PhD students and hundreds of MSc students from around the world, and I had learned a lot from them. I pointed out there are things I have never done, such as skiing, but someone in a stetson in a gulch near Death Valley said ‘howdy’ to me and I said ‘howdy’ back. There are lots of other small but meaningful examples.
I am missing out on that third stage, retirement, where I was supposed to have enough money to live on, and to go on holidays and travel around. We had planned to roam Europe, but it is not happening. We have done a little since my diagnosis, but that is coming to an end. But as Marcus Aurelius said, “You have lived for 5 or 100 years. What is the difference?” He was clear that from atoms we come, to atoms we return, with just a short time between that is our life. Take what is given and be happy, don’t regret a future you were not fated to have.
Dealing with cancer has been the biggest challenge of my life. When I was diagnosed, I was given 2-2.5 years to live. It is now 3.3 years, so in one sesnse I have done well. I do feel a bit of a fraud, telling everyone I was dying and then living this long.
I studied philosopohy for two years as an undergraduate. I was drawn by many areas, but two in particular are relevant here. The stoicism of Marcus Aurelius, the Roman emperor, is important to me, the way we take what we are given with strength and reason. We don’t give in to irrationality and emotion. It is important to be strong. the experience of cancer has taught me that people are strong, that they are resilient. the language of war is better than the language of the psychologist to explain how we should deal with cancer. The other philosophical approach is existentialism as explored by Sartre, the idea that life itself has no meaning except that which we give it. Life is just a matter of breathing from birth to death. To make something of it we ourselves as individuals must decide what the point is. There is no external force that determines our purpose.
This has its importance for dealing with cancer. According to Nietszche: “He who has a why to live can bear almost any how.”
I have always been an atheist. Getting cancer did not challenge this at all. I do not fear death, but I do fear dying. I fear pain in particular. Death is nothing. Most of us are known in a two up two down fashion. Beyond our grandparents and grandchildren we are nothing. David Eagleman said: “There are three deaths. The first is when the body ceases to function. The second is when the body is consigned to the grave. The third is that moment, sometime in the future, when your name is spoken for the last time.”
My life and death is summed up in one of my favourite Bertrand Russell quotations. “I believe that when I die I shall rot, and nothing of my ego will survive. I am not young and I love life. But I should scorn to shiver with terror at the thought of annihilation. Happiness is nonetheless true happiness because it must come to an end, nor do thought and love lose their value because they are not everlasting.”
My final piece of advice is that life is what you make of it. We don’t need grand ambitions, the smallest things can bring the greatest contentment. Live for now, not for a future that might not exist, but don’t forget your community, your friends, your family, your commitments.
Cancer 247
Posted on April 13, 2026 Leave a Comment
The hallucinations are getting worse. A few minutes ago I thought I had a mug of tea in my hand. I raised it to drinķ from it and my hand just kept moving past my face. There was no mug.
Another example – I am not sure it is an hallucination – that has occurred 2-3 times today is where I stare at my arm and I am convinced it is not mine, even when I touch it.
The hallucinations are increasing with the tiredness. I am very tired today. I have spent most of the day asleep. It is not surprising after my living wake yesterday. My son called it Awake. A couple of others have taken it up. I am not sure. What do you you think?
I wrote about the wake on a Facebook cancer support group. Everyone who responded loved the idea, perhaps it will start a trend. There are 180 likes so far. While I like to think everyone should have such an event, I am not sure there is always the community there to create and support it. It is not an event I could have created by myself. It depended on so many other people. Still, it could have different formats.
Cancer 246
Posted on April 11, 2026 1 Comment
Well, that was an experience. I have some advice for those of you who have a terminal diagnosis of one sort or another, don’t wit until you are dead to have a wake, especially if you have a wonderful set of friends. I don’t really know where the idea ame from. It was originally going to be a few people have dinner together, then 36 people turned up for the meal, but we had not decided to do anything special, so we decided to arrange it properly.
I have good friends. I am not going to mention anyone by name, partly because I am likely to miss someone out and upset them, but you people who did so much, you know who you are. I understand many people would like to be at their own funeral, partly because it is the one place where everyone is nice about the person, telling positive stories, and generally laughing with the dead person. Dead person? No. Don’t wait. Organise your own wake or, as in my case, get your friends to organise it. Some people thought it a little odd to run the wake while I was still alive, and I think it took until the wake itself for them to realise what a positive idea it is.
My involvement in the organisation was to determine who to invite. Given I was the only one who knew everyone that makes sense, and now there is a list available for the real funeral. The wife just thought it was a strange idea and didn’t want to be involved. OK, not so much a strange idea but another way of accessing death-related emotions and so unnecessary. Other friends (and relations) picked it up and ran with it.
We had a three hour event in the local parish hall. It started with me giving a short speech, made all the more difficult by the bloody tumours pushing up against my lungs and stopping me accessing my golden voice, where I thanked everyone for coming, and took the liberty of thanking the wife for everything she has done for me. Yes Sue, that is you. And finally a little philosophy of the type that gets me through cancer and dying. That was enough from me. We then had our village singer with a rendition of Yesterday – apt really – followed by an auction. We took the liberty of telling people to bring cash if they could as we thought to try and raise money for Cancer Research. That worked quite well. At the same time there was a raffle running to raise further cash. then there was a short quiz about me, followed by the butcher arriving with pies, peas and gravy. After this, the last hour belonged to the village band, all members of breakfast club, who sand a good range of songs (OK, mostly my punky stuff) and – as an amazing bonus for me – several gave talks about aspects of me which brough tears to my eyes. That sounds a little egotistical, but it was a wake for me!
The attendees came from all sorts of backgrounds. There were people there who knew me when I had hair (I lost it in 1991), several ex-PhD students, one of whom expressed how I was lucky to have such a community and now they understood how I tried to create one for my students at university. There were colleagues from work, friends from all sorts of places, relations, one or two people I didn’t know well but who were invited anyway, and a few people who invited themselves. There were some older people, some children, and others of diverse ages. There were psychologists, oncologists, chocolate makers, music makers and surveyors, schoolchildren, workers and pensioners, There were horse riders, potters and electronic engineers, veterinary nurses, welders and a GP. A range of professions, in fact, not a bad selection for a desert island.
The only thing they had in common was knowing me. Together the auction and raffle raised around £1500 – I haven’t counted it properly yet – which I think isn’t bad as the event was not about collecting money.
At the end as they left everyone was very positive. Some had originally thought the idea of a living wake was a strange idea, but I think most now want one. I will put some pictures on Facebook.
Thank you again, everyone, you made my day. You have given me strength to continue the fight. I sometimes think you do not know what you do. Just by being there you help me continue.
Cancer 245
Posted on April 8, 2026 Leave a Comment
I have been a bit rough lately, though not so bad now. I am trying to get into the habit of having morphine 4-5 times a day, but I find it difficult. I am not designed to take painkillers, though rationally I know it is the right thing to do. I am regularly getting sick and tired the week after my treatment, which means there are relatively few good days in my fortnightly cycle.
The tiredness is intense now. I fall asleep very easily. Leave me in my chair for five minutes and I will probably be asleep. Add to this the hallucinations and things are a bit troublesome. This morning the wife came in and asked me why I had my wallet in my hand when I was asleep. After a few calculations, it turns out that in my dream I was buying someone some cigars, but in terms of hallucination I had tried to actually pay for them. I hope I wasn’t online making payments. I don’t really want a load of cigars to turn up at the house. If I am hallucinating – that isn’t the right word is it because I am actually carrying out actions – then I worry what else I might be doing. I have always been a sleepwalker, there has always been a link between sleeping, dreaming, hallucinating and some form of real action. It seems more intense now. I do worry what I might get up to. Perhaps I need locking up at night!
Food is getting to be a problem. Instead of being a highlight of life I am increasingly looking to eat simple meals, which is a shame for the wife as much of what she does revolves around food and preparing nice meals for me. Now all I might want is a boiled egg and some oatcake, or like tonight, pasta. Pasta isn’t a meal. It is a Tuesday night snack. Now it is easy to eat. I am also eating less meat, and less complicated meat. I am choosing vegetables, or choosing fish. I told you I was ill.
I did manage to get outside and do a little work today. I set up and used the pressure washer.
Driving is getting more difficult. You may have seen how I look at driving in relation to the worsening of the illness, and now I am getting tired just driving around Derbyshire. If I drive 20-30 miles I am tired. We are still planning trips away but it is increasingly doubtful whether any trips will involve going abroad.
Plans look good for Saturday. Thank you to all those who are helping sort it out. I have been left with relatively little to do, but then I suppose one should not have to be involved in the organisation of one’s own wake! Anyone who would like to come but has not let me know then please let me know. I can share my steak pie and mushy peas with you.
