Cancer 201
Posted on July 27, 2025 Leave a Comment
I am a little out of it at the moment. I was told the effects of the radiotherapy could be three or four weeks. I finished 10 days ago, and have since had my 39th round of chemotherapy, and my body is a bit of a mess. The stoma is the worst. The RT was meant to manage the tumour I have at the side of the stoma. It is changing shape but I don’t know whether it will go away. It doesn’t feel like it is. There is also a fair amount of blood coming out of my stoma. This might be two things. It could be a side effect of the RT, where part of the wall of the remaining colon got damaged in treatment, or it could be that there is another tumour sitting down there, causing some trouble. There is blood on my stools, so my head says that might be the case. If so, then…..
The main practical problem is that the stoma is leaking more than usual. The mix of mucous, blood and stool is delightful, and emerges unpredictably.
I had a CT scan two days ago. I will receive the results in a couple of weeks, so I should then have a better understanding of what is happening with the tumours. Another one was growing last time I had a scan, and that may also be continuing to grow as it is having an effect on me – down there you know.
As a result of the changes to my stoma, I now have to inject myself in the stomach daily. That is something new. I have never done it before. I noticed on the packet of syringes that I should receive training, so I watched a YouTube video, and when I tried it a nurse friend came round to observe because basically I was terrified of stabbing myself (over-reaction, I know). It worked fine. It is still weird though, jabbing yourself with a massive scaffold pole of a needle. Actually, it isn’t that big; it is quite small and relatively painless. Just being pathetic, I feel pathetic quite a bit at the moment.
It is getting worse with needles. I have blood tests every fortnight. The last one took four jabs to find a vein. When I went in for the scan, it also took four jabs to get the catheter inserted. Add to that the other jabs and I have been injected 12 times in 8 days. It may not sound that bad but when it is put with everything else, the taking of around 16 tablets a day, plus more during chemotherapy, sitting attached by line to bottles for three days out of 14, dealing with the stoma, dealing with the aches and pains, being unable to do many normal activities, trying to manage all the medications in the several drawers and bags around around the house, and so on and on – for the last two and a half years….
God, I sound miserable. Sorry, a bit of a whinge. It isn’t that bad. I’m still here. I am still eating. I am still driving. I am still reading. I am still trying to write (note the trying bit there!). I did a brisket on the BBQ the other day. I am still socialising. I am still reading Russian classics. I still have plans for the future, even if they have to be for the near future.
Cancer 200
Posted on July 19, 2025 Leave a Comment
My 200th post on cancer. When I started this blog, I didn’t think I would still be here two and a half years later. I am, but there are end signs. There is growth of lumps in my abdomen, and a significant lump at the opening of my stoma. The first led to the possibility of a change of chemotherapy treatment. It hasn’t been changed, but I have been scheduled for a CT scan to see if there are any further changes. The second led to my one-week course of radiotherapy, which I finished yesterday. I was warned of side effects, and I do have them. I was warned that they could be worse next week, which could be fun, as I also have chemotherapy. The effects so far are increased tiredness, changes to my stoma output (you don’t need details) and pain at the lump focused on by the radiotherapy.
It is odd having radiotherapy. You lie down on a hard bench (that wasn’t long enough for me), and the staff line up your lump by using the tattoos that I was given a few weeks ago. I hate tattoos. It takes longer to set up than the treatment, which for me lasted about one minute, half from one side of my abdomen, half from the other side. There are no feelings when the radiation enters, though my neuroticism easily imagines that I can feel it. I was sort of let down when the big RT machine didn’t go zap or start flashing laser-style beams at my stomach. Too much science fiction, methinks. I have been reading about nuclear war and radiation sickness this week. I know that there is a little difference between radiotherapy and being a couple of miles from ground zero in a certain Japanese city on 6 August 1945, but it’s my imagination, and I will let it fly whichever way I choose.
My 200th blog. I feel I ought to reflect back on the last two and a half years, but what is there to say? I had a big operation to remove the cancer which did not work as well as expected, I was very ill in hospital for a while and most people thought I was going to die, which if I had not seriously vomitted all over the waiting room at the CT scanning department I might well have done. On my first release from hospital, I collapsed and was taken back. While in hospital, I attended my sister’s funeral (yes, she died of cancer) in a wheelchair five days after my operation. I remained quite ill for a few months. My chemotherapy started in June 2023 and ever since then, with short breaks, I have been treated every other Tuesday, usually most of a day in the hospital being pumped full of drugs, and then spending the next two days attached to a bottle with another drug, so three days a fortnight of active chemotherapy. The following Thursday it is blood tests, followed by meeting the consultant on Friday who, so far, has mostly cleared me for treatment the following Tuesday.
That is if all goes well. I then have CT scans every three months, and various other things go on.
It is relentless. There are times when I just want to stop the treatment, enjoy my last few weeks or months without being jabbed, poked and poisoned, and die contented. But I don’t, or I haven’t yet. I just put up with it. There is the important six-day period where there is usually nothing happening. This has on a number of occasions been the opportunity to go away, whether to Northumberland, the Lake District, Yorkshire, Scotland, or occasionally the Netherlands. These trips keep me going, make life worthwhile. I am lucky that I don’t generally have severe side effects, and that I can do most normal things.
Except, I can only walk a short distance, I don’t drink alcohol, I am a little limited regarding driving, ie I usually have to stop by about 3pm, and I am useless in the evenings. A later night out for me is 8pm. I then turn into a pumpkin. At home I can sit and watch TV quietly until around 9pm, but late nights are out of the question. The only thing apparently unaffected by cancer is my diet. Apparently people lose their diet. I haven’t. The problem is when you are less capable of exercise but still eating the same (or more, I need treats when I am feeling down), the weight increases. Add that to the hernia around my stoma then I am not the thin thing I was.
I rarely mention social support because a certain person doesn’t want to be talked about, but I have excellent support from family and from friends. I have many people I can turn to and rely on.
There are six weeks breaks from treatment, where we have been to the Baltic coast of Germany and to the Pyrenees. We are hoping for another break in September/October (assuming I am alive, that is always a corollary when planning beyond a few days away). Bavaria? Alpujarras? Denmark? South of France? Driving of course.
I still try to write. I have lots of projects that proceed very slowly, because I don’t have the energy. I recently completed supervision of a number of MSc students. I am not planning any further paid work. Much as I always enjoyed supervision, my favourite part of my job, there is a time for it to stop.
Overall, life is good. It is not what was planned, but then plans have to change. As I have often said, I am not frightened of death, not existing is irrelevant when you don’t exist; but I am a little nervous of dying if it is going to be painful. I can only hope that one day I will be happily doing my thing, and during the night I will drop dead. It might be a bit harsh on those close to me, but it would be ideal from my perspective, looking forward.
Cancer 199
Posted on July 14, 2025 Leave a Comment
I am sitting waiting for my first dose of radiotherapy. I have a growing item on the edge of my stoma which is a little problematic.
I don’t know why but I am nervous about radiotherapy. I have read about the potential side effects, which can be monstrous, but so far I have not had serious side effects with the rest of my treatment. Perhaps it is because I grew up in the Cold War and we were all terrified of radiation sickness. Basically. That is what I am being given, though with my consent, unlike Hiroshima, Nagasaki, Bikini Island and the rest. I also hope that the dosage I receive will be a little smaller.
One week of radiotherapy, Monday to Friday, and then next week back to chemotherapy. I would complain that it never ends – but I don’t want it to end!
Cancer 198
Posted on June 24, 2025 Leave a Comment
I am not going to provide detail with this one, suffice to say that yesterday started well and ended badly. I was at hospital again in the morning. That is Thurs, Fri, Mon, Tues, Fri, Mon, with the two off days being chemo bottle days.
After the hospital it was a walk with the kids. Dropping them off was when it started, serious stoma bag leak with diarrhoea. All my clothes. Mess. Later, it happens again, worse.
I feel physically a little better today. Anti diarrhoea tablets work if you take enough of them. It is just the sense of humiliation, the psychological strain, a reminder.
It is not surprising that many people with this kind of problem don’t want to go out. In private it is bad enough, in public it is unbearable.
Cancer 197
Posted on June 21, 2025 Leave a Comment
I have read quite a lot of Holocaust literature. The subject fascinates me, as it reveals some of the worst and best aspects of human behaviour. Currently, I am reading Jozcef Debreczeni’s Cold Crematorium. Written just after the war by a Hungarian journalist who lived in Vojvodina, now part of Serbia. The book was largely unknown in the UK until it was recently published by Vintage Classics. It provides a detailed picture of the author’s experiences in various work camps, including a brief account of Auschwitz, but mainly within the Gross-Rosen group of camps, in the south of Poland.
Debreczeni was a journalist with an eye for detail. His descriptions of the suffering of the slaves are consummate. He describes the work, the beatings, the trading in the little food available, the constant deaths from violence and starvation, the illnesses, and so on.
What relevance does this have? For me, now, Holocaust literature is helpful. Some people wonder how I can read about pain and death like this, but it is helpful. I may have an illness that is slowly killing me, but at the moment, I have a generally good life. I may spend too much time going to hospital (6 out of 8 working days at the moment, in a couple of weeks it will be every day for radiotherapy), but on the other hand no one is beating me, no one is starving me, no one is making me spend twelve hours a day digging a tunnel in bare feet, no one is threatening me with instant death if I don’t take my cap off and stand to attention, or likely to shoot me at a whim. I sit in my garden with a glass of lemonade, sheltered from the sun under a canopy of trees, I have family and friends around me, I have the freedom to get in my car and visit places, even go on holiday (when I can get away from the hospital for long enough).
It is a simple comparison. There are always people who are worse off than you. The people in the camps were men, women, and children of all ages. At least I have lived most of a normal lifespan. During the Holocaust, they were killed as babies, children, and young people. It is an extreme example, but perhaps I need one.
